HSCT Warriors Podcast featured on Causepods!

so grateful for the opportunity to share more information about HSCT and the HSCT Warriors Podcast on the Causepods show… highlighting “the use of podcasts to raise awareness for a good cause... Whether that’s a non-profit, charity, medical cause, social justice movement, or anyone looking to create a positive impact in the world, from the local level to the global population.”

Beyond grateful for all the good people who have helped to make the HSCT Warriors Podcast possible, especially my very good friends Billy Alletzhauser and Jill Ross… fellow warriors Ali Strong and Carol Cosme… and of course, all the brave warriors who have taken time for an interview to share their journey with HSCT. It’s not easy to be vulnerable and share personal stories with an invisible audience, yet I am ever grateful to everyone who shares to help illuminate the invisibilities of autoimmune disease, recognize the possibilities of a future free from disease progression, connect through our shared experience, and advocate for an inclusive society.

So glad you’ve joined us!

Be sure to check out my interview and other stories about good causes at Causepods.org and stay tuned for the upcoming episodes of our Season 2, as well as updates about the exciting new venture, HSCT Warriors, Inc. …

In the meantime, be kind. Be well.

Special Episode 0A: Radically Rooted

Have you suddenly found yourself transformed, yet distracted by old habits or routines that don’t align with your transformation? Are you striving to find the mindset for self-care, compassion for yourself, empathy for others? Do you find anxiety or calm when you consider caregiving to support yourself or a loved one through the HSCT journey? Have you found yourself transformed by HSCT, though not quite sure how to support continued healing?  

Consider this special episode a “check-in” on our progress, awareness of where we’ve been and where we’re heading, reminders to meet ourselves where we are to practice acceptance and empathy, and awaken our capacity to heal at the cellular level…

It has been quite an honor to connect with the inspiring journeys of so many incredible people and I am beyond grateful for the opportunity to serve our community and help illuminate the invisibilities of autoimmune disease. Having reached nearly 4,000 people from at least 15 countries around the world, it is exciting to imagine the possibilities when we find growth and connection in our shared experiences.  

I’ve received feedback and requests for an episode to explain in detail, ‘What is HSCT?’ (quite simply, obliteration of a diseased immune system by chemotherapy followed by the introduction of one’s own stem cells that “reboot” the body to develop a new immune system free from diseased cells, understood further through research)… or episodes to explain what to expect when you show up for evaluation, or even mobilization…  

We hear these requests and while the protocols around the world for HSCT are unique, we acknowledge that uncertainty and unpredictability can be a tough experience for people to navigate. We hope to offer more specifics – developing new episodes with a panel of Warriors to answer your questions from multiple perspectives later this fall – and remain mindful that an underlying goal of this podcast is to develop collective intelligence. In order to develop collective knowledge and understanding of HSCT, it is imperative to keep communicating, listening, and sharing the unique stories that evidence strategies that work, and we hope to hear more from our listeners – always feel welcome to share your questions or feedback.  

I started this podcast to support individuals (veterans, hopefuls and caregivers) through the HSCT journey, lift up voices to illuminate invisibilities, and help us find commonality in our humanity along the journey of autoimmune disease. To lend a platform for HSCT Warriors to offer insights that create connections, reveal grace, promote wellness and cultivate well-being. To shine their light and share strategies that promote transformation, healing, and wellness. To help HSCT hopefuls and caregivers be inspired and know they are not alone. To inspire listeners to recognize the possibilities of a future free from disease progression, connect through our shared experiences, and advocate for an inclusive society…

Very much aligned with this vision, I am excited to announce the integration of various special episodes – this fall we will engage with a panel of HSCT Warriors to answer your direct questions, so be sure to submit any questions that you have about HSCT. We’re also introducing a series of intermittent new episodes designed to offer insight and connection by promoting radical healing and wellness.

Leading the way is Jessica Lichaa, founder of Solid Roots yoga studio in Lexington, Kentucky and creator of Radically Rooted: Embodied Yoga and Lifestyle, a training initiative offering a wealth of resources and practices to develop self-compassion and awaken the caregiving area of the brain; incorporate body-based self-care routines into daily life; awaken the somatic-sensory areas of the brain, and promote neuroplasticity to heal the damaged holding patterns of autoimmune disease.

Join us as Jessica shares more about her vision for Radically Rooted, how radical self-care practices can support HSCT veterans with continued healing, support HSCT hopefuls in their efforts to maximize health and wellness, and support HSCT caregivers to provide and nurture with compassion and empathy. Join us for a simple, guided self-care practice… tune in and expand your capacity to heal at the cellular level.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and perfect the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Stay tuned for another special episode highlighting another Radically Rooted embodied self-care practice… until then, be sure to listen next Wednesday for the journey of another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.

Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”

Tags: #HSCT, #warriors, #RadicallyRooted, #radicaltransformation, #embodiedselfcare #snowflakes, #superpowers

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Reflections and Invitations

What an exciting first month of the HSCT Warriors Podcast! Reaching nearly 4,000 people in 12 countries around the world, it is exciting to connect through our unique stories and our shared experiences.

So far, we’ve featured stories from good work in Chicago to battle Multiple Sclerosis and Stiff Person Syndrome… next month we will hear journeys of HSCT Warriors who traveled to Mexico and Singapore, learn more about Lupus, and uncover additional resources.

As we continue to grow our Warrior community, we invite you to connect in new ways.  If you would like to share your journey on the podcast, please sign up to be interviewed! We ask that you extend the invitation to other Warriors so that we can highlight more journeys and ideas, targeting specific questions or feedback. We’re creating a panel of HSCT Veterans to offer insight from multiple perspectives, so if there are questions that you would like answered, we invite you to complete this brief “Ask the HSCT Warrior” survey and stay tuned as we develop new special episodes.

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We hope our listeners consider each episode an invitation to help illuminate the invisibilities of autoimmune disease, recognize the possibilities of a future free from disease progression, connect through our shared experiences, and advocate for an inclusive society.

Next month, we’re excited to feature special episodes designed to bring awareness to embodied self-care practices. The special episodes will highlight the science behind finding homeostasis, regulating our nervous systems, healing our tissues, and cultivating neuroplasticity. Offering guided self-care practices intended to support all Warriors (including HSCT hopefuls, veterans, and caregivers) along their journey, we hope all of our listeners will benefit from finding space to be attuned.

In the meantime, be sure to subscribe for weekly episodes highlighting new HSCT Warriors’ snowflakes and superpowers, or share a rating/review on iTunes or SoundCloud.

Thank you for being a part of our HSCT Warrior community!

The Journey Begins

Welcome to the official website of the HSCT Warriors Podcast, designed to bring voice to our journeys – highlight the snowflakes (individual experiences) and recognize our superpowers – because we are just as unique in our HSCT journey as we are in our experience with autoimmune disease.  

Whether you are – or know someone – who is battling Multiple Sclerosis, Rheumatoid Arthritis, Type I Diabetes, Scleroderma, Lupus, or any of the 24 autoimmune diseases that HSCT can halt – or are simply inspired by transformational journeys – you are in the right place. The interviews you will hear on this podcast are intended to offer insight and create connections, reveal grace and express gratitude, promote wellness and cultivate well-being.

As we continue to grow the HSCT Warrior community, illuminate the invisibilities of autoimmune disease, recognize the possibilities of a future free from disease progression, connect through our shared experiences, and advocate for an inclusive society… we’re glad you’ve joined us.

 

Good company in a journey makes the way seem shorter. — Izaak Walton

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Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.