Learn from Meghan how not to poke the bear of scleroderma and more about HSCT at Duke (Ep. 39)

Warrior: Meghan Newell Davis
AI: Scleroderma
HSCT: 1/22/19 at Duke University
Superpower: Unbreakable

Have you ever watched a doctor google your symptoms to find help? How often do you take the little things in life for granted? As you move through life, do you take caution not to ‘poke the bear’?

HSCT Warriors Podcast S4.Ep. 3

Celebrating a son just one year younger than her new immune system, Meghan offers our listeners a glimpse into life with a very aggressive form of scleroderma and her experience with HSCT at Duke University. The highly competitive-Ironman-Nutritionist suddenly found her body to be suddenly sore, stiffening and stonelike. As she continued struggling to hide invisible symptoms that were physically shutting down her body, she spent weeks visiting doctors, researching her symptoms, and experimenting with various alternative remedies to find some relief.

Tune in and hear more about the freight train that wrecked Meghan’s capacity to function in everyday life despite not looking sick. Once she was connected with a rheumatologist, Meghan finally had diagnoses of multiple autoimmune diseases and was fast-tracked to HSCT at Duke University. Through HSCT Meghan gained lifelong warrior friends and family, including her doctors, nurses and care team and shares so many valuable insights!

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

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Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Resources:
Meghan’s race to HSCT
Meghan_fit4life on Instagram
Dr. Twining, Myrtle Beach
Dr. Baker Frost, Medical University of South Carolina

Season Four Update with Ali Strong (Ep. 37)

Warrior: Ali Roberts
AI: Multiple Sclerosis
HSCT: 11/6/17
Superpower: Gratitude

Do you believe in the power of self-talk?  That the words you say to yourself become the narrative that you fulfill?  Where do you find yourself bringing attention?

Copy of HSCT Warriors Podcast Ep. 48 (1)

Another season brings another conversation with Ali Strong about her experiences post-HSCT with diet and nutrition, exercise, stress, shingles, mindset, wellness, and personal challenges to continue promoting wellness, healing and longevity. Tune in and learn how Ali navigated wellness through the flu and shingles at two years post HSCT, then take away some valuable insights about life that she shares from her coaching perspective.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.
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Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Revisit lessons of gratitude and positivity with Ali Strong

Warrior: Ali Strong
AI: MS
HSCT: 11/6/17
Superpower: Gratitude

Where do you find yourself bringing attention in life? Are you able to find goodness with your current state of being? What have been your most important lessons in life? 

HSCT Warriors Podcast Ep. 45

Embrace a shift from the typical podcast interview and listen in on Jen’s conversation to check in with Ali Strong on her HSCT journey, and share more about the new nonprofit, HSCT Warriors, Inc. for which Ali serves on the Advisory Board. Tune in and be inspired to integrate strategies that calm the mind and nerves, and be encouraged to find ways to shift the sense of control, or make time in a busy day to nourish yourself.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide so reach out if you’re interested in sharing your story. We would definitely love to learn how the podcast has helped your journey with autoimmune disease… if you could take a moment to share your story, leave us a comment on instagram or share feedback on our website. We appreciate all your support, and if you’re looking to contribute in other ways – including volunteering or monetarily – we’d love to hear from you. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

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Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Revisit gratitude with Ali Strong

Warrior: Ali Strong
Snowflake: RRMS
HSCT: 11/6/17, Northwestern Memorial, Chicago
Superpower: Gratitude

Where do you find gratitude in life? Are you just surviving in life, or are you thriving?

Replay update with Ali Strong

Tune in for updates from Ali Strong and find out what our first HSCT Warrior has been up to since her first interview. Find out more about the healing that Ali has experienced, her training and research to grow her #alistrong business, and get inspired to shift from just surviving to thriving.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Replay this live interview of Zen Jen hostessed by friend Sara Leah

Warriors: “Zen” Jen & Sara Leah
Snowflake: RRMS
HSCT: October 18, 2017 at Northwestern Memorial Hospital
Superpower: Zen

Do you embrace life’s challenges with open arms? One step at a time? As you find a way along your journey, do you pause to reflect in the moment and express gratitude for those who are with you?

Replay with Jen and Sara

Learn more about the journey of our very own “Zen” Jen, as she shares the mic for a chat with her dear friend Sara Leah and they find commonalities in their unique experiences with MS. With a fun break from the usual interview, enjoy this conversation from the lens of someone curious to know more about HSCT, and in celebration of Jen’s one-year HSCT birthday.

Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to host this interview live in the Belfry; especially for his efforts to create the soundtrack, record, edit, and perfect the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #MultipleSclerosis, #MSWarrior #HSCTsnowflakes, #HSCTsuperpowers

Resources:
haltmyms.com
hsctwarriorspodcast.com
HSCT at Hoxworth Blood Center, University of Cincinnati
HSCT at Clinica Ruiz, Puebla Mexico

 

Revisit Karin’s journey to halt lupus with HSCT

Warrior: Karin
Snowflake: Systemic Lupus
HSCT: December 10, 2015, Northwestern Memorial
Superpower: Empathy

Do you tend to put yourself last on your to-do list? Have you ever been at the point in life when you realize, “this is for the birds!” or feel ready to get on with [life] already?

Revisit Karin's experience with HSCT for Lupus(2)

Karin’s experience with Systemic Lupus left her bandaged and barely recognizable. Failed medication after another, she realized that her autoimmune disease was “for the birds.” Despite the fear of being away from her busy life for too long, Karin found herself ready for HSCT and encourages listeners to “take care of number one first!”

Tune in to learn more about how Karin harnessed positive energy during HSCT and shifted to a new normal of patience, appreciation for the things she used to take for granted, and found strength to get back to work within just 2 months post-HSCT.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #SystemicLupus, #HSCTsnowflakes, #HSCTsuperpowers

Special Episode 0A: Radically Rooted

Have you suddenly found yourself transformed, yet distracted by old habits or routines that don’t align with your transformation? Are you striving to find the mindset for self-care, compassion for yourself, empathy for others? Do you find anxiety or calm when you consider caregiving to support yourself or a loved one through the HSCT journey? Have you found yourself transformed by HSCT, though not quite sure how to support continued healing?  

Consider this special episode a “check-in” on our progress, awareness of where we’ve been and where we’re heading, reminders to meet ourselves where we are to practice acceptance and empathy, and awaken our capacity to heal at the cellular level…

It has been quite an honor to connect with the inspiring journeys of so many incredible people and I am beyond grateful for the opportunity to serve our community and help illuminate the invisibilities of autoimmune disease. Having reached nearly 4,000 people from at least 15 countries around the world, it is exciting to imagine the possibilities when we find growth and connection in our shared experiences.  

I’ve received feedback and requests for an episode to explain in detail, ‘What is HSCT?’ (quite simply, obliteration of a diseased immune system by chemotherapy followed by the introduction of one’s own stem cells that “reboot” the body to develop a new immune system free from diseased cells, understood further through research)… or episodes to explain what to expect when you show up for evaluation, or even mobilization…  

We hear these requests and while the protocols around the world for HSCT are unique, we acknowledge that uncertainty and unpredictability can be a tough experience for people to navigate. We hope to offer more specifics – developing new episodes with a panel of Warriors to answer your questions from multiple perspectives later this fall – and remain mindful that an underlying goal of this podcast is to develop collective intelligence. In order to develop collective knowledge and understanding of HSCT, it is imperative to keep communicating, listening, and sharing the unique stories that evidence strategies that work, and we hope to hear more from our listeners – always feel welcome to share your questions or feedback.  

I started this podcast to support individuals (veterans, hopefuls and caregivers) through the HSCT journey, lift up voices to illuminate invisibilities, and help us find commonality in our humanity along the journey of autoimmune disease. To lend a platform for HSCT Warriors to offer insights that create connections, reveal grace, promote wellness and cultivate well-being. To shine their light and share strategies that promote transformation, healing, and wellness. To help HSCT hopefuls and caregivers be inspired and know they are not alone. To inspire listeners to recognize the possibilities of a future free from disease progression, connect through our shared experiences, and advocate for an inclusive society…

Very much aligned with this vision, I am excited to announce the integration of various special episodes – this fall we will engage with a panel of HSCT Warriors to answer your direct questions, so be sure to submit any questions that you have about HSCT. We’re also introducing a series of intermittent new episodes designed to offer insight and connection by promoting radical healing and wellness.

Leading the way is Jessica Lichaa, founder of Solid Roots yoga studio in Lexington, Kentucky and creator of Radically Rooted: Embodied Yoga and Lifestyle, a training initiative offering a wealth of resources and practices to develop self-compassion and awaken the caregiving area of the brain; incorporate body-based self-care routines into daily life; awaken the somatic-sensory areas of the brain, and promote neuroplasticity to heal the damaged holding patterns of autoimmune disease.

Join us as Jessica shares more about her vision for Radically Rooted, how radical self-care practices can support HSCT veterans with continued healing, support HSCT hopefuls in their efforts to maximize health and wellness, and support HSCT caregivers to provide and nurture with compassion and empathy. Join us for a simple, guided self-care practice… tune in and expand your capacity to heal at the cellular level.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and perfect the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Stay tuned for another special episode highlighting another Radically Rooted embodied self-care practice… until then, be sure to listen next Wednesday for the journey of another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.

Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”

Tags: #HSCT, #warriors, #RadicallyRooted, #radicaltransformation, #embodiedselfcare #snowflakes, #superpowers

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